August 31, 2010

Answering questions about MS

Catherine,

You asked what the symptoms of MS are. I could write a list here, but it would be incomplete. Visit MSAA site (links on this blog) and type in "symptoms" in search bar or a more complete reference is found by typing in "Winter/Spring 2009". I found the Symptom Management Update invaluable.
Also, you and M. might find "Fall 2009" -Men's Health- valuable.

MS Diet

Fruits and Veggies should be organically grown or washed to remove chemicals.

NO
sugar, diary, gluten, wheat, oat, barley, spelt, rye. (Sprouted okay)

Safe
Rice, Millet, Quinoa, and Buckwheat

Helpful: No chemicals or preservatives -
One (1) ounce of purified water per two (2) pounds of body weight
Avoid hot baths
Lemon in 1st glass of water per day
1/3 cup Chlorophyll plus 1 egg yolk

Reasons behind Helpful:
Chemicals and preservatives can irritate body systems to greater or lesser degrees according to individuals.
Water helps flush the dietary mistakes we make from our systems. It is a pain to have the pelvic girdle take a hit from a sclerosis but less harmful than diabetes when it goes undiagnosed leading to possible kidney failure or amputations. Trust me, I've seen both.
Hot baths cause instant fatigue, sometimes making it difficult to dangerous to lift oneself out of the bath.
Lemon, though beneficial, can cause more frequent urination, limiting quality of life and keeping us MSers home bound.
Chlorophyll and a raw egg yolk feed the myelin sheath that takes such a beating with the disease.

Additional notes: Any cleanses that you do should be short. Short is a relative term. for me it means less than ten days with the exception of my brand of a Colon Cleanse (see post).
Athough wheat,barley, spelt and rye are no-no's, my personal exception can be found under recipes - Ezekiel Bread - The reason is this. When tested in the lab, this bread burns as a protein. (over 80% protein). The body seems unable to recognize this bread as a carbohydrate or able to break the grains apart into individual grains, rendering them safe for MSers.

Again: note the disclaimer on this blog.

MS - Vitamins and Herbs

There are a lot of theories out there. I include only the ones I have used or am considering.
Key: Ones I have used in italics.
Ones I continue to use in Bold.

Colon cleanse See post.
Vitamin C Only during cold and flu season
LBS II This herbal combination is a product of Natures Sunshine. I can get it for you if you pay for Tax and shipping. This combination has often and lovingly referred to as "Poop Pills" Trust me on this one.
Vitamin B-complex I didn't see a difference but am concidering using it again.
Pycnogenol This can be purchased may places and in many forms.
Lecithin I swear by this one and probably ought to devote a whole post to it. This is nerve food and helps heal in the brain!!!!
Herbal CA Again this is a Natures Sunshine product. Basically it is an herbal form of calcium.
Chlorophyll (1/3 cup every day) Must be refrigerated so I tend to forget it when I have it.
Eight ATC Another Natures sunshine product. I now use Nerve Control instead.
Talk to me in person or via email if you are interested in more details of these above mentioned vitamins and herbs.

Keep in mind that MS is different for every one. What works for one is not necessarily good for another. I encourage you to consult your Maker, in whatever form you worship for guidance. For me, Heavenly Father created my body, He and my body know what it needs. It is my mission to figure out what they are telling me.

As to the theories of cures out there . . .

I have joked about going out into the desert during a lightening storm with a lightening rod in one hand and a live scorpion in the other. Sure one of them will cure me or kill me. Either way I'm out of my misery!

Notice I say I've joked about it.

The one theory that I am sceptically considering is Bee Pollen. I'm open to input on that one, preferably from someone who has tried it.

Dealing with MS - Start with a Colon Cleanse -

There are a bunch out there but this is the cheapest and most effective for me. I keep some of this on hand all the time just in case the drugs slow and stop the evacuation process.
The first time I used this for a whole month. This is what I suggest to anyone needing to get the old poop factory moving.
Take this first thing every morning before a glass of water and especially before eating.
The night before - Four (4) prunes or dried plums
2 Tablespoons Golden Flax seed
Cover with purified water.
The consistency of this concoction may take a bit of getting used to, but it costs a whole lot less than the colon cleanse that you buy at the health food stores!

Managing MS pain

Libby, in answer to your question. Yes, at times the pain is unbearable. Although Doc is more than happy to prescribe a variety of drugs, I prefer to use good old Ibuprofen. I noticed that one of the first painkillers the doctor prescribed years ago was simply a double dose of what my 200 mg over the counter Ibuprofen recommended.
Why pay the prescription price? I asked myself.
Why live with the hallucinations that come with 'Vicadin' or a few others?
This last round of pain reminded me just what a bad case of the flu felt like. Ever one to try and figure out what my body is trying to tell me, I sat quietly and listened to it and the Spirit when the house was quiet.
Potassium--- my daughter's coach insists that she eat a banana every day to keep her muscles from cramping. I ate a banana and went to bed--- without painkillers. I slept well (relatively) and woke without the pain--- only a ghost of it to remind me that I had chosen wisely.
Hope that helps.

Oh My!

Oh my, it's been a long, long time since I posted anything here. Really, I do this now because I recently got a note, if you can call it...