As a Multiple Sclerosis patient, it has become necessary for me to reinvent myself. I have ... and continue to ... refuse to lie down and die, or in this case, follow the normally prescribed drugs and treatments that do nothing to defeat my disease. I am not only surviving by pursuing alternatives, I am thriving. I do the things specialists told me I would never be able to do. I walk and hope to one day even run regularly. I retain my cognitive and creative abilities for the pleasure of my readers. Although you may never see me on my daily walk, you are welcome to read my novel(s) and in doing so, come to ask yourself, "How can the 'out of the box' protocol she has followed, help my loved one with an autoimmune disease like Multiple Sclerosis?"

Lynette talks about PWD

PWD? What does that stand for?

Persons with Disabilities. The abbreviation is ironic, though. The idea was to stop using labels and start using "people" first. The initials have a risk of becoming a label themselves.

I was part of the disability rights movement, promoting things like the. Americans with Disabilities Act, for example, before I realized I was a person with disabilities. Did you know that before the ADA was passed in 1990 it was legal in this country for a store owner to exclude a person who used a wheelchair because they took up too much room in the aisles? I went to a public meeting in Kansas City in the late 80s and heard one person after another tell of the discrimination they faced because of their disability. The ADA is a matter of equal justice for people with disabilities.

Most of my early career, like Paige's (Paige is the heroine in More Than a Job), was with people with developmental disabilities. We were working for the right of people to live in the community and not in institutions. While group homes as opposed to individual apartments are not always the best solution, sharing a house and staff can work for some folks, so that is the setting that Paige works in. I have certainly seen poor health care for people with disabilities. Some of the people you run into don't give the same level of health response, and as in the story, sometimes advocacy with them has to be pushy.

My disability is a chronic pain condition. Does it impact my life day to day? Sure. Does it keep me from living the life I want? No. You adapt, cope, figure out better ways to do things. I see that same tenacity and success to live independently in most of my friends who have disability.

The belief in the disability justice community is that every person has a right to community life and their disability is part of who they are. Think of disability as a characteristic like nationality, gender, height, weight. Each of us is different, and most of us who live long enough will experience disability at some point in their life. It is part of the whole of who we are.

Lynette Endicott, Author
Desert Breeze Publishing

"Where starting over is the path to romance".

Just Released - More than a Job

Coming August 21, 2012 - Animal Instincts

First of the Time after Time Saga with Tami Dee

Coming October 15, 2012 - Return of Joy
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